Poppa & Grandmother came in town to visit. What a fun visit we had. The last time they saw LAW in person was last summer. So they were thrilled to see that he is thriving. He put on a show for them, swinging his bat and golf club. He is ALL boy. ALWAYS has a ball in hand...like father - like son:).
Today Lawson moved up to "A Step Up" class at daycare. Lawson will now sleep on a napmat (instead of a babybed), eat all table food and only take 1 nap a day. He did very well his first day. He slept 3 hours during nap time and ate a great lunch (mac&cheese, greenbeans and a roll).
Lawson is finally eating like a champ! This past weekend was big. He tried rice, carrots, greenbeans, potato salad and a Gerber Graduate lil' entree (turkey w/ mashed potatoes and gravy). This is quite a milestone for Lawson!
Ok - Lawson says DA DA, DUCK, TOUCHDOWN and YELLOW (etc) but not MOMMA. What is wrong with this picture:)? YELLOW - the most difficult color to pronounce and that is the one that he says. Go figure....
Lawson got his first haircut today. He was such a good boy. He had a, "what's she doing back there?" look on his face. Though we got it trimmed, Eric doesn't think we got enough cut off. I guess it was hard for me to part with the curls:).
Today was Lawson's 18 month checkup. People always say, "they grow SO fast." But you don't really think about it until it is your own!
We got a good report from the doctor. He is still small for his age but the doctor said that he is on an upward climb so she isn't worried. Lawson did get his HepA shot today. It is a immunization that they give at 18 months and 3 yrs. old.
A quick update on everything else:
Eating - it is a slow process but he is starting to try new things. He loves a "brown and serve" dinner roll, cheese puffs and Gerber puffs. The therapist wants us to introduce him to several bites of thicker Stage 3 food one meal a day. She said that we will eventually get there. Eric and I look forward to the day that we can place a green bean (his FAVORITE) on his tray and he can eat it without gagging. :) Maybe soon.
School - we are going through a stage with separation anxiety. He doesn't like being dropped off at school or the church nursery. This has just started over the past two weeks. He has a bit of a COME APART. We HATE leaving him like that but they say that you have too. We stand outside the door (out of site) to make sure that he settles down. It doesn't take long.
BIG NIGHT -
Lawson has been cruising around taking 2-3 steps on his own here and there for the past month. But tonight he took 8 WHOLE steps by himself! He walked to Eric then to me - - back and forth. And the more exctied we got, the more he wanted to do it. Laughing the whole time.
Lawson started an antibiotic today for his ear infection & congestion. The doctor said that we should see a big difference within 72 hours.
On a different note, we are starting to see an OT and Nutritionist at The Bell Center in Homewood (www.thebellcenter.org). The center is for children with special needs (cerebal palsy, delays in walking/talking/eating, etc). We are really looking forward to working with them on Lawson's eating.
Lawson is developing quite the personality and attitude:). He is constantly on the go. Cruising from room-to-room. He takes 2-3 steps on his own and continues to get braver with each day. We expect him to be taking off any moment now.
The probe was removed today and we are going home. YEAAAAA! We are all anxious to sleep in our own beds tonight.
We are going home on some new meds. One med is to help strengthen that muscle between the esophogus and stomach. It is cammed Bethanacol. We take that 4 times a day (30 minutes before each meal and before he goes to bed). Then we are on two doses of Prilosec a day.
Lawson had a Gastric Emptying test today. He had to drink his milk that had some special powder in it. Then he had to lay under a machine for an hour to watch the emptying process. His stomach was supposed to have emptied at least 50% of the content within that hour. Well, it only emptied 10%. This told us that his stomach is slow in digesting his food/milk.
One more test...
Lawson had to have a pH probe inserted in his nose. It runs from the nose to the bottom of his esophogus. It measures the amount of acid in the stomach. He had to have this in for 24 hours. Eric and I had to document each time he coughed, vomitted, slept, etc.
We are waiting for the results.
This morning Lawson had to be put to sleep so that Dr. Morris could perform the endoscopy procedure. He took lots of pictures and biopsies. For the most part, everything looked normal. He said that the pictures show signs of inflamation from where he was vomiting a lot. The scope also showed that the flap between the esophogus and stomach is sitting open. Which can make him more prone to reflux.
On to the next test...
Lawson is starting to feel better from getting some fluids. He had bloodwork, a CT scan, chest x-ray and stomach x-ray today. We were pleased to see that everything came back normal. Still running test in hopes of finding the problem.
We ended up in the hospital a little sooner than we expected. Lawson's vomiting has only gotten worse so we took him in for fluids. After 5 long hours in the ER, they admitted him into Children's around 10pm.
We hope everyone had a nice Christmas. Lawson had a ball and was in to everything:).
I guess you can say that we are starting the new year with a bang. Due to Lawson's excessive vomiting, we are having a gastro test (scope) done on Jan. 2. We will go into the hospital on Tuesday. They will put a tube in Lawson's nose that reaches to the bottom of his stomach. This will monitor the acid build up in his stomach. The next day (he will be staying overnight) they will run a scope down to see what is actually going on. They will also take a biopsy to see if it could be related to allergies. Dr. Brian Morris, the Gastroenterologist, said that it could be a number of things: severe reflux, allergies, a stomach issue, etc.
We are praying that we get some answers.
Please say a little prayer for Lawson this week. Thanks, Love - Eric and Ash
Lawson had his 15 month checkup and shots today. He is moving up the growth chart but isn't quite on the charts for his real age. The doctor seemed pleased with his progress. All-in-all...a good report. We don't mind "well" doctor visits:).
Hard to believe that we brought Lawson home from the hospital a year ago today. What a blessing! We discovered that his 4th tooth (top, right front)has broken through. We are so used to that gummy smile. It will be so funny to see him with teeth.
Lawson had his flu shot (booster) and his sodium drawn today. His sodium was 141, which is in the normal range. The doctor asked that we get it checked again in 3 weeks. YEAAAAA....no visits to Children's for 3 weeks!!!!!!!! (we pray:)
We are due to see the Endorcrinologist after the new year. Who knows, maybe we will have come off his medicine by then.
As for an update on everything else, Lawson is doing well. With the exception of the typical runny nose, he has been well. He is eating a lot better! We were thinking that he would have really put on some weight at his last dr visit but he only put on 6 oz. He is an active little man so he seems to be burning it off as quick as he is taking it in. That's ok though, we'll catch up:).
Speaking of active....wooo, he is on the move. He loves to walk behind his bus and throw any ball that is within reach. I guess he gets that honest:). He has this funny grin that he does now. You can see it in one of the attached videos. It is so funny. That little gummy smile cracks us up every time.
We hope that everyone had a nice Thanksgiving. Eric and I are so thankful for our family and friends. We are thankful for our health and all that God has brought us through this year.
Today we are going to see an Occupational Therapist about Lawson's eating. His gag reflex is EXTRA sensitive, which they say is very common in preemies, and we are hoping that she will give us some good techniques for desensitizing that reflex. Lawson doesn't eat a lot. In a way, I consider him on somewhat of a liquid diet. I know that Lawson is hungry and would like to eat more than he does. The problem is - - he just can't handle it. He gags and throws up.
He should be on table food at this point. Well, he isn't even on Stage 3 baby food b/c of this problem.
We are praying that the OT can help us work through it.
Lawson had his sodium checked again today. It was NORMAL (138). THANK YOU JESUS! It looks like we will be going into surgery Friday for tubes.
He also had an upper GI test. That was interesting. They wrapped his legs in a towel, strapped him down, held his arms above his head and tried to make him drink the barium.
He FREAKED out to say the least. They did get a little bit of barium in him for the test. It showed his level of reflux. It was a grade 3 (the worst is a grade 5). I am waiting to hear from the pediatrician so that we can discuss the test in detail.
Thank you all for your prayers. Please continue to pray that the ear tube surgery go well Friday.
Had two doctor visits today. One for lab and another with his Ped. First, the lab...his sodium came back a little high (147). The Endocrinologist ordered Lawson to receive the DDAVP twice a day (.025). Second, pediatrician visit...he has fluid on his right ear. She didn't put him on an antibiotic. She said that she would if his symptoms get worse, but if not, the ENT will remove the fluid during surgery Friday.
We will check his sodium again Wednesday, October 11. We will also get an upper GI test. This will tell us if his swallowing is normal and it will show any obstruction. We are praying that all test come back normal.
Today would have to be the worst day for Lawson since we've been home. Lawson couldn't keep anything down Tuesday night so we took him to the pediatrician Wednesday morning. They had no explaination for him vomiting but wanted us to go to Children's to get his sodium checked and a stomach x-ray. We got to Children's at 10:15am. The stomach x-ray came back normal but his sodium came back high (150). We went to the ER to get him started on some fluids. This is where the nightmare began. No one could find a vein to even start an IV. They stuck him 9 times and finally got one in his scalp. After a couple of hours (with fluids and his DDAVP), they checked his sodium. It went down to 141. After 8+ hours in the ER, they admitted Lawson. They wanted to get another sodium the next morning so we were praying that they could draw the blood from his IV. WELL - the IV went bad at 1:30am. They were able to draw enough blood from his finger to check the sodium. His sodium was up (147). They gave him a dose of his DDAVP and told us to work on keeping him hydrated. They checked his sodium again at 4:30pm. It came back normal (141). We were discharged at 8:30pm. And boy were we ready to come home. We were all exhausted.
Today we had 2 doctor's appointments. First with an ENT, Dr. Scott Hill, at Children's South. He confirmed that Lawson was the perfect candidate for tubes. We are scheduled to get them October 13. After 5 ear infections, we are welcoming the relief.
Our second appointment was with the lab. Lawson's sodium was 141 (NORMAL). That means we follow the ween down schedule that the Endocrinologist gave us. The next step...NO MEDICINE!!!! We will have his sodium checked next Monday to confirm that it stays normal.
What a HAPPY DAY - Lawson's 1st Birthday! He woke up to mommy and daddy singing to him this morning. To think back to a year ago today, the emotions are indescribable. Look how far God has brought our little miracle. He is SO good.
I pray that God continues to be with Lawson as he journey's through life as a 1 year old!
Today was a long day for Lawson. We visited the dermatologist for his hemangiomas at 8:15am. The doctor would like to leave it alone and to see him again in 6 months. Next was his sodium check. That was rough today. They had to stick him three different times (heal stick, top of hand and top of foot). His sodium was at 144. It was on the high end of Normal so we aren't going to tapper down on his meds this week. Last was a visit to the pediatrician. He had a 102.5 temp. It was viral. All-in-all, we are glad today is over.
We went for our second sodium check today. It came back normal (136). The normal range is 135-145. We can continue to tapper down on his DDAVP medicine. We will continue to check his sodium once a week for the next 2 months. We hope that it continues to be in the normal range and that we can eventually come off the medicine all together.
Another milestone is met - Lawson is crawling. He has been crawling backwards for a while and now he is crawling forward. We were at Memmaw & Pappaw Palmer's house when he took off after a ball. He is getting SO big:)!
GOOD NEWS - Lawson's sodium was normal and we can start to taper down on his medication. We will start this Friday and get his sodium checked every Friday. The reason we have to taper slowly is to give his adrenal glands time to start working again. His body SHOULD pick up on the fact that there is not enough ADH and it SHOULD begin to produce the hormone. Checking his sodium on a weekly basis will help us monitor the level.
Today was Lawson's first full day of daycare. He did great. He has 5 other kids in his class. There are 4 teachers, 2 in the mornings (Lauren & Marie) and 2 in the afternoons (Patricia & Laura). They seem to love Lawson. They say that he is a "smiley little thing:)".
Lawson went to the Endocrinologist today. Dr. McCormick had nothing but good things to say. Lawson is finally on the growth chart for his official age. He is 17 lbs. (3%) and 27 inches long (25%). The doctor said that if his bloodwork (sodium) came back normal, that he would like to taper down on his medicine to see if Lawson's body will start making the right amount of ADH. He said that will taper down over a 2 month period and take his sodium weekly. This is very exciting news. We can eventually see if he has grown out of having the Diabetes Insipitus.
I'll post as soon as we find out the results of his bloodwork.