GOING HOME TODAY!!!!!!!!! We've been dreaming about this day for close to three months now. What a blessing this day is.
We want to thank each and every one of you for your love and support during this time. Your prayers have meant the world to us. And they have worked. God is SO good!
We met with the neonatologist today. Looks like we will be going home on Tuesday. They have to setup all of our followup appointments (eyes-hearing-neorology-endocrine-etc).
Lawson slept well last night. We are hoping to go home tomorrow. We will be meeting with the discharge nurse tonight. We have to go through CPR for infants, education on DI and how to give his meds and car seat test.
Yes, we had a sleepless night. It wasn't because of Lawson. We were up for his feedings, to take vitals, and just to be sure he was breathing every other minute:).
Eric and I got a big call from Children's Hospital today. They asked us to "room in" with Lawson. This is where we are placed in a private room with Lawson. We will be doing everything for Lawson while having a nurse close by for questions (i.e. questions about his meds and monitoring his sodium). We are very excited. We will actually become REAL parents:).
Lawson's MRI test results look normal. It showed that his pituitary gland is fully developed. They are not sure why he is not producing enough ADH. There is a possibility that he will grow out of it but we have to wait and see.
Lawson had an MRI today. They changed is diaper, fed him and wrapped him in a warm blanket...needless to say...he slept right through it. We won't get the results until Thursday. They are trying to give him his DDAVP once a day. They are hoping to get the dose down to once a day. They are seeing how he tolerates it now (making sure that he is not getting dehydrated).
They changed his formula again. He is now on Similac Neo Care. This has a couple of more calories.
Lawson had a renal ultrasound today. It looked good. It showed no issues with the kidneys. It confirmed that his kidney's are responding to the ADH and the pituitary gland isn't producing enough ADH. They began administering the synthetic form of the ADH (DDAVP) through his nose. This is much better than the shots. (They put a drop in his nose while he is sleeping)
They have also changed him to a different formula. It is a higher calorie formula. He seems to be tolerating it.
Lawson was moved to Children's Hospital today. We have mixed emotions. We were sad to leave Brookwood. And we are anxious about going somewhere new. But we know that this is a step closer to going home.
They will begin the test tomorrow morning. They will start by doing a renal ultrasound and lab work.
Today is a good day. Lawson is beginning to make himself known in the NICU. He lets them know when he is ready to eat or when he just needs to be picked up. They are doing a good job with spoiling him.
Lawson is doing well today. He is growing bigger each day. There is still no word from Children's Hospital. We are waiting on a bed to open there. We are not sure how long they will keep us at Children's. It could be a week, or even two weeks. It depends on how long the testing takes.
We are praying that Lawson can come off the shots and that we can administer the meds through a nose spray.
Lawson is staying awake more often and needing a little more attention. He watched Charlie Brown's Christmas tonight. They proped him up in bed and pulled the tv stand in front of him. His eyes were so wide. He was so cute! I believe he is the only child in the unit that needs to watch a movie at this point:). I think he is trying to tell them that he is ready to go home.
